We have partnered with the Dana & Christopher Reeve Foundation and the participating Neuro Recovery Network facilities to develop a system that collects data on research participants with spinal cord injuries so the data can be analyzed and new treatment methods can be developed.
Neuro Recovery Network Facilities
For this project, we developed a system that allows the data to be sent to a centralized data warehouse completely de-identified. The system is able to track each participant as they move from one facility to another, but within the centralized data warehouse there is no way of tying the data points back to a specific individual.
This gives the researchers a more complete picture of how each patient progresses through treatment since the data is not siloed within each facility. The system that supports this is called CrossIQ.
All of this is done through the Dana and Christopher Reeve Foundation. Our systems are used by two types of sites within the network. To find out more, click the links below!
The NACTN (The North American Clinical Trials Network) Registry: https://www.christopherreeve.org/tomorrows-cure/current-research-partners-and-initiatives/nactn/
The NeuroRecovery Network: https://www.christopherreeve.org/todays-care/living-with-paralysis/rehabilitation/the-neurorecovery-network-nrn/